Adeline is a cheeky seven-year-old but her epilepsy has left her brain damaged, and the NDIS won't help, leaving her family desperate for access to therapies that could help her.
'Time is something we don't have': Family of dying six-year-old added to the public housing waitlist
A Queensland family say they are hamstrung by bureaucracy as they try to make the most of their time left with their six-year-old daughter in palliative care.
Photo shows A young girl sits in a wheelchair. Her eyes are closed.Rebecca never imagined the impact moving to a regional town would have on her daughter's health
Rural and regional Australians have worse health outcomes than those in urban centres. Doctors and health advocates have some advice for those wanting to make the lifestyle change.
Photo shows young girl looks at camera as older woman looks at herWA man fights back against epilepsy after seizure sets off spiral into isolation
John Hoyne hopes creating a place for people with epilepsy to connect will help break the loneliness that came when he was diagnosed at 45.
Photo shows A man looks at the camera with a blank expression.When Christmas lights start going up, Jessi goes inside
What sparks joy for some, can pose a health risk for others. But experts say there is a way for people with photosensitivity to enjoy Christmas lights.
Photo shows Jessi Hooper, wearing all black, sits in her wheelchair in front of a home with Christmas decorations.Epilepsy not always physical, says family of 3yo whose 'little brain can't turn off' some nights
Three-year-old Sofi Garcia has had hundreds of seizures in her life, but her parents will not let the common neurological condition define her. They're hoping her story will show how epilepsy can impact more than a person's physical health.
Photo shows little girl holding stickFamily shares epilepsy story
It's one of the most common neurological conditions in the world, but the far-reaching consequences of epilepsy extend beyond just physical health.
Has Video Duration: 1 minute 44 seconds.An epilepsy drug lets Everly 'play and laugh' like other toddlers. But it costs $60k per year
Families of children who have experienced "transformative" results from fenfluramine during a Melbourne trial say they cannot afford the drug, which costs $60,000 a year, if it is not added to the Pharmaceutical Benefits Scheme.
Photo shows A child playing on a circular netted swing at the park, wearing a pink helmet as well as sunglasses.Steve needed to get fit before brain surgery to treat his epilepsy. Now he's running half marathons
A feeling of anxiety, the taste of metal and then the strongest deja vu — that's how Steve Guthrie learnt to know a seizure was coming on as a child. But one day, that warning system failed.
Photo shows A composite image: On left, Steven Guthrie smiling weighing 90 kg. On right, slim and fit Steven runs in half marathon.Medication for rare form of epilepsy costs $40k a year for children, putting it out of reach for many families
Families are desperate for more funding for medication for Dravet syndrome, a form of epilepsy that can cause life-threatening seizures.
Photo shows Skyler and Bianca playing in the grass, in sunshineCountry cop's mission after delivering 'gut-wrenching' news about mate's daughter
Telling friends that their daughter had been found dead is the hardest thing Tom Mort has done in his life. It left him feeling powerless, so he's doing something about it.
Photo shows A young girl from the shoulders up in a black dress and with sunglasses on her head.Queensland study to use smart watches to detect seizures
Researchers will examine whether purpose-built smart watches can help patients assess seizure risk by detecting stress signals.
Photo shows Professor Aileen McGonigal holding a smartwatch in front of a brain scan.Kay's teachers thought she was a 'daydreamer' when she actually had epilepsy
Kay Guascoine's vacant stare in the classroom hid a serious medical condition which took almost two decades to diagnose. Now a teacher herself, she’s calling for greater awareness of the condition.
Photo shows An old photo of a little girl with brown hair holding a stuffed toyJules Schiller discusses his experiences for Epilepsy Awareness Day
ABC Radio Adelaide presenter Jules Schiller discusses his experiences for Epilepsy Awareness Day.
Has Video Duration: 1 minute 25 seconds.ABC presenter Jules Schiller is wearing purple today to raise awareness of epilepsy
ABC radio presenter Jules Schiller is wearing purple today to raise awareness of epilepsy.
Photo shows A man smiles.NDIS rules out support as mum watches 'one child thriving and one child surviving' with epilepsy
When Luke Oxley was diagnosed with epilepsy as a child he enjoyed the chance to be different from his brother. But the novelty wore off when he realised his world was rapidly shrinking.
Photo shows The pair have their arms around each other and stand knee-deep in turquoise water wearing gogglesPeople living with epilepsy urge NDIS to review support criteria
People living with epilepsy, their families and advocates, urge the NDIS to review support criteria as an Esperance man — who suffers about five seizures a day — experiences repeated rejections.
Has Video Duration: 2 minutes 1 second.App designed to assist people with epilepsy recognised in Prime Minister's science awards
The Prime Minister's Prizes for Science are Australia's most prestigious awards for excellence in the area of science. Those awarded will share in $750,000 to go towards their scientific endeavours.
Has Video Duration: 3 minutes 36 seconds.How a mother helped save her toddler's life after he turned blue on their remote farm
Kate Mitchell experienced every parent's worst nightmare when she found her son unresponsive. Now, she's helping other families facing similar emergencies.
Photo shows A young mum and her toddler boy, with both laughing.Ella blossomed when she tried CBD oil for epilepsy. But now her mother can no longer afford it
Kat Cooper says her daughter is deteriorating since she stopped her medicinal cannabis, which costs $196 per 1 millilitre every 12 days.
Photo shows Mother and daughter with trees in the background'We all slept very well last night': Mum's relief after embassy helps track down life-saving medication
A South Australian mother says the Australian embassy stepped in to help her track down life-saving medication for her son, after an airline lost their luggage. Thomas Mattinson and his family travelled to Copenhagen so he could represent Australia in frame running.
Photo shows A young boy in a wheelchair at an airport